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Day 1: Wednesday 14th of September 2022

Theme 1: Compassionate Communities & Community-based participatory research

Chairs/ speakers: Liesbeth De Donder (Belgium) and Max Kleijberg (Sweden), Patty Doran (UK), Carol Tishelman (Sweden)


Outline of the workshop

During this day you will learn about community-based participatory research and related participatory action and co-productive research methods. This is an approach to research in which researchers partner with community stakeholders with the aim to collaboratively combine knowledge development and action towards social change. The goal of this day is to learn about ways in which these participatory approaches to research can be applied in public health palliative care initiatives such as compassionate communities. Through interactive workshop sessions, introduced by an international keynote speaker, we will explore questions such as: Who is the community? What does participation mean in participatory research and in compassionate communities? And, how can we engage community stakeholders to develop partnerschips? This course provides you with knowledge about key principles and concepts related to participatory research, and offers several workshops on creative data generation methods that can be applied in participatory research projects.

08:30-09:00 Registration and coffee

09:00-09:30 Welcome and introduction (Luc Deliens)

09:30-10:30  Day 1 introduction (Liesbeth & Max). Team building: Getting to know each other, mapping expertise and expectations.

10:30-10:50 Coffee break

10:50-11:10 Keynote lecture 1  Who is the community? (Carol Tishelman)

11:10-12:00 Interactive part 1  Exploring tools to understand who the community is, e.g., developing personas.

12:00-13:00 Lunch

13:00-13:20 Keynote lecture 2  Participation in PAR (Patty Doran)

13:20-14:10 Interactive part 2 Participation in relation to ComCom

14:10-14:30 Keynote lecture 3  Data generation strategies (Liesbeth & Max)

14:30-14:50 Coffee break

14:50-16:00 Interactive part 3  Data generation strategies hands-on. Participants choose 2 out of 4 interactive parts in different break-out rooms (groups of 10, 35 minutes per interactive part).

  • Photovoice (Liesbeth)

  • Walk-along, participatory observation  (Max)

  • Groupmodel building (Suzannah D’hooghe)

  • Most significant change (Sylvia Hoens)

16:00-16.30: Conclusions and wrap up

19:00-20:30 Social event: Bar tour Ghent City Center (TBC)

Day 2: Thursday 15th of September 2022

Theme 2: Evaluating public health palliative care interventions: processes and outcomes

Chairs/speakers: Joachim Cohen (Belgium), Hanne Bakelants (Belgium), Anne Van Driessche (Belgium)


Outline of the workshop 

Public health palliative care interventions, such as Compassionate Communities, are on an upswing internationally. The basis for research aiming to describe, understand and evaluate the impact of such approaches remains at an early stage in development. The goal of this workshop is to jointly advance our knowledge of public health research approaches and evaluation designs to capture the complexity of these ‘new’ public health initiatives. The structure of the workshop is based on active involvement of all participants and consist of three main phases: 1) understanding the background of public health research and examining the most used evaluation models/designs; 2) Exploring the complexity of public health palliative care interventions and what this means in terms of evaluation; 3) Collectively examine tools and indicators that are developed to capture the complexity of public health intetventions.  

08:30-09:00 Registration & coffee

09:00-09:15 Check-in

09:15-09:45 Keynote lecture 1 – Public Health research and process evaluation (Joachim Cohen)

09:45-10:30 Keynote lecture 2 –The MRC framework: Application of the BOOST intervention (Anne Van Driessche)

10:30-10:50 Coffee break

10:50-12:00 Interactive part 1 – Application of the MRC framework: iFocus (Anne Van Driessche)

12:00-13:00 Lunch 

13:00-13:45 Keynote lecture 3 – From complex interventions to events within complex systems (Hanne Bakelants & Silke Marynissen)

13:45-14:30 Interactive part 2 – Developmental Evaluation and the case of a Compassionate University
(Hanne Bakelants)

14:30-14:50 Coffee break

14:50-15:10 Keynote lecture 4  Implementation science and theoretical frameworks (Hanne

15:10-16:00 Interactive part 3  Normalisation Process Theory (Hanne Bakelants)

16:00-16:30 Conclusions and wrap up

19:00-20:30 Social event: Dinner @ Het Pakhuis 


Day 3: Friday 16th of September 2022 

 Theme 3: What can we learn from epidemiology for public health palliative care research 

Chairs/speakers: Agnes van der Heide (The Netherlands), Joachim Cohen (Belgium)


Outline of the workshop 

Methods and approaches from classic public health and epidemiology can provide important contributions to research around public health palliative care. They offer important insights about the health problems of full communities and populations of dying individuals and those involved and try to address answers about causality. As a result, we recommend that researchers in the field of public health palliative care also consider research methods and tools from this area of public health as options for answering some of their research questions.

The goal of this workshop is to obtain knowledge and understanding about the history of epidemiology, core concepts, and different research designs.

08:30-09:00 Registration & coffee

09:00-09:30 Introduction -Getting to know each other,  mapping expertise around epidemiology and expectations

09:30-10:30 Keynote lecture 1 – History of epidemiology, core concepts and their application to end-of-life care research (Agnes van der Heide)

10:30-10:50 Coffee break

10:50-12:00 Keynote lecture 2 – Addressing causality in research (Joachim Cohen)

12:00-13:00 Lunch 

13:00-14:30 Small group exercises and plenary discussion (eg about drawing samples, choosing research designs, making causal diagrams)

14:30-14:50 Coffee break

14:50-16:00 Small group exercises and plenary discussion (eg about ‘mixing’ methods, what data collections to consider for research)

16:00-16:30 Conclusions and wrap up

Day 4: Saturday 17th of September 2022

Theme 4: Translating research to practice (valorisation of health promoting palliative care)

Chairs/speakers: Marijke Dheedene (Belgium) and Emma Woodhouse (UK)


Outline of the workshop

This workshop is divided into two parts: (1) what is valorisation and how is it applied at the level of a research group, and (2) what personal impact do I have as a researcher to put my research values and ideas into practice and make changes?

The first part is presented by Marijke Dheedene, valorisation coordinator of the End-of-Life care research group. Research valorisation and impact is an explicit aim of the End-of-Life care research group. The research team has invested profoundly already more than 20 years in developing effective methods for knowledge exchange (KE) with relevant stakeholders and in stimulating the actual use and uptake of knowledge, tools and interventions. The team’s extensive efforts around research valorisation have been recognized, internally for instance by the award for societal valorisation from the VUB, but also externally by excellent evaluations received by funders for the team’s interaction with societal stakeholders in the context of its strategic basic research projects.

Different key elements of this approach in valorisation are presented, next to the evidence-informed models of knowledge transfer and exchange that is used in doing so. Unfortunately, not every valorisation story is a success story with a happy ending, so the pitfalls surrounding valorisation are incorporated as well. This workshop won’t focus on the typical low-hanging fruits or on spicing up a personal CV, but on long-term commitments, projects and realisations. The insights in long-term valorisation can be inspiring for both starting as well as seasoned researchers.

In the second part of this day, we challenge your true personal impact as a researcher: how will I make impact as a researcher, as a caregiver, as a human?

Presented by Emma Woodhouse, Community Action Programme Manager at St Christopher’s Hospice in London, this workshop will look at ways in which research has made changes or can be part of change-making in society. We will consider how as researchers we are not neutral but members of communities, with experiences, values and commitments to the society we live in, which give us opportunities to make our research matter. We’ll look at change-making techniques or principles. We’ll ask, how can our work tackle rather than replicate inequalities? How can our research matter to others? How can we be through research who we want to be as people?

After reviewing some examples of methods and ways that people have created societal change through research agendas, we will set you a series of challenges and we will work together in action groups to design ways to tackle them. At the end of this session, we’ll come together to share our ideas, and create some intentions for the next year. 

08:50-09:00 Welcome coffee
09:00-09:05 Introduction
09:05-09:25 Keynote lecture 7
09:25-10:20 Free to fill in*
10:20-10:40 Coffee break
10:40-12:10 Interactive workshop
12:10-12:20 Closing words (Steven Vanderstichelen)
12:20-13:20 Lunch

* Q&A, junior lectures, meet the expert, … We highly encourage the interactive involvement of early career researchers


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