Scherrens AL, Jacobs A, Beernaert K, Pardon K, Raemdonck E, Fallon M, Cresswell K, Faric N, Williams R, Lundeby T, Hjermstad MJ, Deliens L, Kaasa S. Integrating patient-centred and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways. Palliat Care Soc Pract. 2024 Nov 19;18:26323524241296143. doi: 10.1177/26323524241296143.
Abstract
Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organisational contexts of cancer centres across Europe through the application of implementation science strategies. This paper describes the current state of applying PCC in routine cancer care and presents a forward-looking perspective on how the MyPath project can successfully adopt and implement digital PROMs across countries. A literature search was conducted to provide the state-of-the art.
Keywords: implementation science; medical oncology; patient care planning; patient-centred care; patient-reported outcome measures; psycho-oncology; quality of life.
© The Author(s) 2024.
