Advance care planning (ACP) for people with dementia and their family
Abstract project
Background
Advance care planning (ACP) is a process of communication between patients, family caregivers and professionals about preferences for future care, including end-of-life care. Given the progressive cognitive decline nature of dementia, ACP is particularly relevant for persons with dementia (PWD) and their caregivers. However, the uptake of ACP in dementia is low.
Aim
Develop and test an easy accessible, user-friendly and person-centered interactive ACP website with information about the disease, reflective questions, links to advance directives and case based videos, for PWD and their family.
Methods
Input from PWD themselves will ensure the website is user-friendly, accessible and person-centered. In a second phase, a randomized feasibility trial will be conducted to investigate: a) effectiveness of the use of the website compared to face-to-face conversations with clinicians and b) feasibility for a future definitive RCT following the CONSORT guidelines for pilot/feasibility trials.
Best Practice Guidance: Human Interaction with Technology in Dementia
Recommendations based on the research conducted in the Marie Sklodowska Curie International Training Network INDUCT
https://www.dementiainduct.eu/guidance/
https://www.dementiainduct.eu/wp-content/uploads/2023/06/D6.2-D6.5-BPG-website-format-update-15-6-2023-v6.2-FINAL.pdf
