Author: Marjolein Matthys
Date: 5-11-2024
Supervisors:
Prof. Kenneth Chambaere, End-of-Life Care Research Group, Ghent University
Prof. Benedicte Deforche, Ghent University
Prof. Luc Deliens, End-of-Life Care Research Group, Ghent University
Dr. Naomi Dhollander, End-of-Life Care Research Group, Vrije Universiteit Brussel
Abstract
The need for palliative care is growing on a global scale, yet timely access and uptake are hindered by limited public knowledge and negative beliefs. Broad educational initiatives directed at the general population are therefore warranted.
However, to develop effective tools and programs, it is essential to first gain a deeper understanding of public perceptions. Key questions arise: What exactly is known or unknown about palliative care, and how is this knowledge distributed across society? How are the perceptions and meanings attributed to palliative care shaped by broader personal and sociocultural contexts? What role does publicly available information and communication on palliative care play, and how are these various sources understood, interpreted, and evaluated by the public?
The research described in this dissertation sought to address this pressing gap by focusing on two primary objectives. First, a deeper understanding of public perceptions of palliative care within the sociocultural context of Flanders was gained through four methodologically distinct studies. Second, using an integrated approach of co-creation and Intervention Mapping, a comprehensive public campaign strategy was developed to address unknown, misunderstood, and stigmatized aspects of palliative care.
The findings of this work highlight the critical need for diversified strategies to foster a more informed and engaged public, while offering both general direction and practical tools to achieve this.
Marjolein Matthys is a cultural anthropologist and researcher at the End-of-Life Care Research Group, Ghent University & Vrije Universiteit Brussel.
